Next Tuesday (10/30/12) we will travel to Duke for Rion's *hopefully last for a while* MRI & neuro-oncologist appointments on the 31st. We are extremely optimistic about this trip- no seizures, his white blood cells & platelets are still doing fabulous & the last few MRI's have been progressively better. This trip feels like the conclusion to the past years worth of doubt, confusion, fear, education, hope & perseverance. We are more than ready to have Rion declared "DONE" with active treatment!
The game plan is for Rion to start his LAST round of chemo next Friday 11/2/12- 5 days on & then ??? off. The idea of not having to go to the doctor each week for blood work & not having to anticipate him being sick for a week out of the month is fabulous. It takes 4 phone alarms just to remember all the medication he has to take on "chemo days;" no more of that!
So please keep us in your prayers next Tuesday & Wednesday as we travel and meet with the doctors. While we want to be done with treatment, we want Rion to be declared healthy & stable more than anything!
Blessings,
Emily
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