Nothing new really to report from yesterday's appointment with the radiation oncologist (the only appointment we had.) Rion is still doing amazingly well, he does have some minor skin burning/irritation on his left ear and behind his ear but he is keeping vitamin E cream on it which does a great job keeping it under control. We did get the ok yesterday to use hydrocortisone cream if it continues to bother him but so far it hasn't gotten that bad. He continues to have no nausea and a really, really good appetite. His energy levels vary from day to day and even hour to hour but over all he is able to stay really active. We believe 100% that Rion is responding to treatment so well for a variety of reasons, mainly because of his positive attitude & increased focus on a healthy diet...and of course all of the prayers going up for us on a daily basis!
Thanks for getting up with us and our journey. We're happy to be in the home stretch now and anxious to get up to Duke next month to have the MRI and see what our next step will be.
I will also be posting once we have the t-shirts in that we'll be selling in case anyone is interested.
Emily
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